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Reactive Attachment Disorder Blog

05/30/07

Elephants and Rice Krispies ... and sorting it out

Posted by : Nancy Spoolstra in Reactive Attachment Disorder Blog at 09:10 am , 560 words, 339 views  
Categories: Support, Trauma, Trust Issues
RKYesterday I spoke on the phone with one of the most awesome moms I know. She is parenting what my friend Julie affectionately calls “The Combo Platter Kid.” Only this mom’s kid is a different kind of combo platter than Julie’s LuLu is.


I have blogged about this mom before. She has really struggled herself to understand her son’s behaviors and how best to intervene. But she is getting conflicting and confusing advice from the professionals with whom she consults.


Based on what she has observed with her son, she doesn’t feel he is autistic. I don’t believe she is fighting that diagnosis per se … she just doesn’t believe that is the problem. From all that she has told me on the phone, her son sounds like he has major TRAUMA issues and major TRUST issues. He has endured and been subjected to medical procedures since he was an infant. His trust and trauma issues have significantly delayed his development in some areas, plus his palate issues have obviously affected his speech, so his ability to articulate his feelings (never mind the fact that he isn’t even three years old yet) is simply not there. So he takes out his anger and his frustration on his mom … who is simultaneously his source of comfort and his “abuser” … because she takes him to the doctor.

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This poor mom is damned if she does and damned if she doesn’t. She is quite bright, quite committed to her child, quite tuned in to the nuances of his behavior, and quite confused. How could she be otherwise? I can’t imagine trying to sort out what she is seeing. I can’t imagine trying to not worry about how far behind he is falling in speech and other developmental areas, knowing that if she pushed him to “catch up” he would only fight her harder and exhibit even more PTSD.


So all she can do is wait, and more or less work with her son on his time schedule. And in the meantime, as she continues to seek support and answers, she continually hears criticism from folks who are only seeing the leg of the elephant, or the trunk of the elephant, or the ear of the elephant—but not the whole elephant.


The only advice I presume to be qualified to offer is advice about attachment. Perhaps I am only seeing part of the elephant as well. But from where I sit, if her son doesn’t learn to trust her and eventually other adults, his speaking disability will not be his biggest issue. I think this mom is doing a fabulous job and her little boy is lucky to have her.


I once sent Julie a bumper sticker that says Been There, Still There. I had a stash of other profound bumper stickers that were purchased at the same time and the same place… although I have no idea when that was! I am sending a couple to this mom. They read:

Worry about your own d**n family! (Only without the asterisks!)

... and ...

I do whatever my Rice Krispies tell me to!


Can you tell how my life was going when I bought those bumper stickers?


Maybe they will help get a few folks off this awesome mom's back!


Photo Credit 1
Photo Credit 2

Comments, Pingbacks:

Comment from: Chromesthesia [Member] Email
I hope things will get better for her and that the rest of the world, especially professionals will catch up to her and him...
PermalinkPermalink 05/30/07 @ 10:13
Comment from: soblessed [Member] Email
Ugh. I'm so sorry that the professionals in this situation don't reach out and work together. For all the beefs I have with working in the public schools, I know that the PT or the nurse or the psychologist is right around the corner to bounce stuff off of and that's incredibly beneficial to setting up an effective treatment plan.

I'm sure this is already being explored, but maybe some sign language for this lil guy would help. Being unable to communicate is one of the biggest frustrations in childhood, even for on-=track toddlers, so I've found teaching sign to my language-challenged little kids to be helpful. Also, studies show that using sign language has a positive effect on developing VERBAL language as well. The act of expressing yourself seems to open up all of the "language centers" in the brain, including verbal language.

Best of luck to this woman....what a dedicated mom :)
PermalinkPermalink 05/30/07 @ 16:55
Comment from: Nancy Spoolstra [Member] Email · http://attachment-disorder.adoptionblogs.com/
I think she is already doing that... but not sure. After awhile I can't keep straight who is doing what... But you are absolutely right about the dedicated mom part...
PermalinkPermalink 05/30/07 @ 17:18
Comment from: Julie [Member] Email · http://special-needs.adoptionblogs.com/
I love my bumper sticker NS, and everyone who knows me thinks it is so very appropriate! Hope this mom decides to call or email me...we can chat about our combo platters.

PermalinkPermalink 05/31/07 @ 10:09
Comment from: coach_kim2c [Member] Email · www.beep.com/members/kim2c
My experiences: The specialists all tried to tell my sister her youngest son was Autistic because he would only grunt and would not get near any strangers. He was three. That was 9 months ago...Now, he won't shut up! He talks non-stop and is very loud and very funny.
I coach a mom who adopted a child with RAD who also has endured terribly painful traumatic medical treatments for years. He is now 4 and in remission and he and mom have come a long way doing great. I would theorize that the medical treatment in many ways was more traumatic than the orphanage. "Beyond Consequences, Logic and Control," by Dr, Brian POst is a great book on behavior of children affected by trauma and attachment issues. It may be helpful.I adopted two special needs siblings with RAD and the years have been very tough! I wish I had known about Rice Krispies. It helped that I was a professional and ran residential youth programs as far as advocating for my kids. Many of their behaviors were so difficult and the judgement of the few so painful that I believe I prayed in 5 minute intervals. My oldest now 18 just got a full scholarship including dormatories to college! My High School Sophmore is in Honors Classes mostly on the Honor Roll, on the debate team and now signing up to be an Emergency Medical Explorer (similar to Police Explorers) I write these things in a message of Hope. I have always maintained a positive vision for my kids and they have succeeded in spite of any mistakes I may have made along the way! Tell your Mom friend to keep her vision strong and just because someone is a professional it doesn't always make them right and you also have to pick through to find the right ones because there are great helpers out there and there are unfortunately some professionals who can pose more harm then good.
Kim Ahrenholz, MA
www.beep.com/members/kim2c
PermalinkPermalink 05/31/07 @ 12:40
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