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Reactive Attachment Disorder Blog

08/11/07

"Shouldn't there be some sort of group?" You are NOT alone!

Posted by : Nancy Spoolstra in Reactive Attachment Disorder Blog at 10:21 am , 819 words, 175 views  
Categories: Support
aloneThe other day I spoke with a mom on the phone who had adopted sibs from Eastern Europe. One child was doing fine, but the other one was not. The older child was in respite at a home that “sort of” understood the dynamics, but not really. This child has threatened mom’s life, in the presence of Dad, and Mom was still shouldering 200% of the burden for making big decisions about the boy’s future and the family’s future. Like so many moms before her, she was in tears on the phone. In one of her emails to me, she said:


When you say you wish we were the first ones (in a situation like this), are you saying that you are in touch regularly with adoptive families, that this seems to come to a head quickly, that you have seen families at wits' end, not knowing what to do, or all of the above? Shouldn't there be some sort of group if this is more common than I thought? The intervention team who was here Friday a week ago said they see a few of these a week. Isn't that an awful lot of folks grasping at straws without a lot of clear guidance?

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Yes, it is an awful lot of folks grasping at straws, looking for guidance. Which is why I keep harping that we all need to come together, as a unified group of parents who are not getting our needs met nor the many needs of our kids. We need to find each other in whatever geographical region we happen to be, and go with each other to IEP meetings or be in each others’ homes when DFS shows up at our door. It is much harder to dismiss us if we are not just one family crying out in the dark. And to that end, there is a group ... the Attachment & Trauma Network! (Have you joined and added your two cents to our cry?)


This mom continues in one of her emails, saying …


I am hoping and praying so much that there is a good answer for all this, but I just don't see any happy ending, any hope, any chance of change. I have committed two years of love, medical appointments, academic help, encouragement, planned nutritious meals, playdates, family adventures, nurturing, advice, guidance, and on and on into this and although I never expected or desired to be thanked for rescuing anyone, I did expect to receive some level of respect and kindness and to be treated as an adult member of the family. Instead, I feel that my "person-ness" has been stripped away by (this child). In his world, I have no right to speak to him about anything he says, does, or plans. And that is a scary place, when I realize that although I have been structured, predictable, consistent, and firm when needed, he has no desire to see me in charge. He is in charge of this home when he is here, and it is not a safe, healthy, or good place.



How many of us can relate to this? I know I can. We try with every fiber of our being to make a difference in a child’s life, and it is rejected. And yet, I sat at our conference last week and listened to the adult adoptees speak of their struggles, and how they simply can’t hear or receive what we are sending. But then again, Beth does. So what is the answer here? How much of this is choice, how much is genetics, how much is who knows what?


Janet Keall told me after reading this post that Amy’s “handling” of the apartment rent was exactly what Janet did at that age. And how Janet’s parents were very frustrated but that nothing her parents said or did would have made any difference. And Pat Johnston commented the same thing … how she expects her child to be in the same situation shortly … even after acquiring a college degree. My husband plans to tell Amy today that in order to spend as she is currently spending yet still pay rent and feed herself, she will need to keep her spending the same and double her hours at work, bringing her to about 60-65 hours a week. She might understand that, whereas she wouldn’t understand someone saying, “You need to be earning $40,000 a year to live as you are living.” This is so far over her head, although we did everything we could to prepare her. I bought her this amazing book a couple of years ago, but I suspect she doesn’t even know where it is. (I saw it at a conference and it is really a great tool!)


More coming on this mom’s particular story. I am sure many of you will completely echo her thoughts.

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Comments, Pingbacks:

Comment from: Mabel03 [Member] Email
I am the frustrated mom that Nancy wrote about. We still don't know what to do with this wounded child. We have spoken of dissolution, we are discussing maybe giving the Attachemnt Institute in Mass. a chance, but we really still lack a peace about any direction.

Having never dealt with DCF before, I am shocked that they are fine with us in a holding pattern since July 20. He is staying with someone we trust, but how long can this huge favor keep going? What if he decides to start up with his behaviors there? It seems to me that DCF has put us all in a very bad position.

I call July 20 The Day The Mask Came Off. Before then this wounded child had done behind-the-back things, except for running away twice. On that day (the actual bizarre behaviors started the day before after a return home from running away and taking his brother with him), he no longer felt the need to hide his blatant hatred of us, my husband and I, or to try to act in a way that went along with our basic household rules. All bets were off that day. He was deliberately trying to push my buttons. As I did not respond, he escalated his behaviors, and then the intervention team came in.

I feel like a really rotten person in saying he is not welcome in this house, but it is true. I do not feel safe around him, and I don't trust him for one second.

I won't go on with my entire story right now, but I would love to hear of others who are or were in a similar place and how things played out in your family. Thanks!
PermalinkPermalink 08/11/07 @ 14:42
Comment from: John [Member] Email
"As I did not respond, he escalted his behaviors...". Wow, been there. That is the part that is so hard to get others, even workers, to buy, or understand. Yes, there are a lot of goodie two shoes solutions, but only if he stops escalating at some point. Sometimes I wondered if the workers inability to hear had to do with having no ideas that would work in such an impossible situation.

You have to be able to feel safe. My middle son was violent, I ended up in the emergency room a number of times (I am a slow learner). Finally, I realized this could not continue, fortunately, he was in line to enter an RTC. Without the RTC, and coming at that time, we would not have made it. He has RAD, FAS, and a bunch of others, but after 10 years we had a good, affectionate realtionship, not normal, but good. If there is any way to involve an RTC, it could be a lifesaver, yours or his. Good luck. John
PermalinkPermalink 08/11/07 @ 21:13
Comment from: Lindy [Member] Email
One of the many sad aspects of this all-too-familiar story is the fact that many of us simply cannot afford an RTC for our child. We would have used that option many years ago if it had been available to us. I'm not willing to sacrifice our financial future for a marginal solution to our family's problem. We were offered respite for a weekend (500 miles away) at several hundred dollars per weekend. There is no easy or affordable solution to this problem. We have had the same conversation re: sacrificing our healthy kids in our quest to parent our unhealthy one. We are still at it.
PermalinkPermalink 08/11/07 @ 22:07
Comment from: mariah [Member] Email
If you are working with the school district, and your child's emotional illness is interfering with his/her ability to benefit from school, the district has an obligation to look at things like therapeutic day school (public or private), and even RTC (involving county mental health in California). IF you are receiving adoption assistance, the county where they were adopted (at least in CA) will pay for RTC through the adoptions unit, rather than county mental health. If you really want more information, check out the child and adolescent bipolar foundation website. They have a forum for parents of kids in, going to, or finished with, RTC. You may have to pay for a membership ($45?) but it is worth every single penny. The people there are a wealth of information, and they've been where you are. Having a child with bipolar isn't a requirement to join. Many of the posters have adopted children.
PermalinkPermalink 08/12/07 @ 00:01
Comment from: NCOZADD@aol.com [Member] Email
Our son initially went into RTC under our medical insurance. When that tapped out, the state Department of Youth Services kicked in, because DS was on their radar because of his past behaviours, and subsequent police reports. We were fortunate in that our out-of-pocket costs consisted of deductables and copays, but even those nearly brought us to our knees.

Also, look into the state programs.... such as MediCal... for help in affording costs.
PermalinkPermalink 08/13/07 @ 11:47
Comment from: getting old [Member] Email
here in Va BEach my RAD child basically cannot attend school and even with the state complaint, etc... he still has no services (you can check out the special needs blog for a similar situation)

see, this is where they get you

you have to have the child charged with a crime in some states, and even then you still may end up paying a lot of money for their care....

even with my son being on adoption sub from another state, there is no easy way to RTC...

this is something they never told you about before adopting

You can ask for an entrustment agreement in most places also, but you run the risk of being charged with adbandonment/neglect

PermalinkPermalink 08/14/07 @ 19:10
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